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    Last Updated: 01/09/2026

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    MediFind found 20 doctor with experience in Stiff Skin Syndrome near Saint Louis, MO. Of these, 17 are Experienced and 3 are Advanced.

    Location
    LocationClose
    20 providers found
      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine
      Experienced in Stiff Skin Syndrome
      Intensive Care Medicine

      Barnes-Jewish Hospital

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      John Kirby is an Intensive Care Medicine provider in Saint Louis, Missouri. Dr. Kirby is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Venous Insufficiency, Peptic Ulcer, Necrosis, Hip Replacement, and Hernia Surgery.

      Experienced in Stiff Skin Syndrome
      Colorectal Surgery
      Experienced in Stiff Skin Syndrome
      Colorectal Surgery

      Office

      4921 Parkview Pl Ste 8C, 
      Saint Louis, MO 
       (3.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Steven Hunt is a Colorectal Surgeon in Saint Louis, Missouri. Dr. Hunt is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Familial Colorectal Cancer, Gastrointestinal Fistula, Anal Cancer, Ileostomy, and Colostomy.

      Advanced in Stiff Skin Syndrome
      General Surgery
      Advanced in Stiff Skin Syndrome
      General Surgery
      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      Maxwell Fohtung is a General Surgeon in Saint Louis, Missouri. Dr. Fohtung is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Peptic Ulcer, Necrosis, Cellulitis, and Nakajo-Nishimura Syndrome.

      Learn about our expert tiers
      Experienced in Stiff Skin Syndrome
      Dermatology
      Experienced in Stiff Skin Syndrome
      Dermatology

      SSM-Sluh Inc.

      1225 S Grand Blvd, 
      Saint Louis, MO 
       (2.2 miles away)
      Languages Spoken:
      English

      Emily Smith is a Dermatologist in Saint Louis, Missouri. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Syringocystadenoma Papilliferum, Syringoma, Sebaceous Adenoma, and Basal Cell Skin Cancer.

      Experienced in Stiff Skin Syndrome
      Plastic Surgery
      Experienced in Stiff Skin Syndrome
      Plastic Surgery

      Washington University

      4921 Parkview Pl, Suite G6th, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Justin Sacks is a Plastic Surgeon in Saint Louis, Missouri. Dr. Sacks is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Hidradenitis Suppurativa, Congenital Generalized Lipodystrophy, Familial Partial Lipodystrophy, Osteotomy, and Lymphadenectomy. Dr. Sacks is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Family Medicine
      Experienced in Stiff Skin Syndrome
      Family Medicine

      Total Access Urgent Care PC

      9556 Manchester Rd, 
      Saint Louis, MO 
       (9.1 miles away)
      Languages Spoken:
      English

      Mollie Spire is a primary care provider, practicing in Family Medicine in Saint Louis, Missouri. Dr. Spire is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Tracheitis, Tracheobronchomalacia, Acquired Tracheomalacia, and Cellulitis.

      Experienced in Stiff Skin Syndrome
      Family Medicine
      Experienced in Stiff Skin Syndrome
      Family Medicine

      Total Access Urgent Care PC

      9556 Manchester Rd, 
      Saint Louis, MO 
       (9.1 miles away)
      Experience:
      44+ years
      Languages Spoken:
      English

      Steven Osborn is a primary care provider, practicing in Family Medicine in Saint Louis, Missouri. Dr. Osborn has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Viral Pharyngitis, Acquired Tracheomalacia, Tracheobronchomalacia, and Tracheitis.

      Advanced in Stiff Skin Syndrome
      Advanced in Stiff Skin Syndrome

      Perschbacher Dermatology

      2821 N Ballas Rd, Suite C-61, 
      St. Louis, MO 
       (13.2 miles away)
      Accepting New Patients

      Dr. Patricia Perschbacher received her Bachelor’s degree from the College of Saint Benedict and her Doctorate in Medicine from Creighton University. She completed an internship in internal medicine followed by a dermatology residency at Mayo Clinic where she received the A.C.E. Award for Attitude, Commitment, and Excellence. Her current memberships include Alpha Omega Alpha Medical Honor Society, the American Academy of Dermatology, and the Mayo Clinic O’Leary Society. Dr. Perschbacher has been named to the national register of Best Doctors/Top Doctors since 2013 and she has been practicing in the Saint Louis area since 2005. Dr. Perschbacher is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Neurocutaneous Melanosis, Familial Atypical Multiple Mole Melanoma Syndrome, Giant Congenital Melanocytic Nevus, and Giant Congenital Nevus.

      Advanced in Stiff Skin Syndrome
      Dermatology
      Advanced in Stiff Skin Syndrome
      Dermatology

      Vista Dermatology LLC

      1058 Old Des Peres Rd, 
      Des Peres, MO 
       (13.3 miles away)
      Languages Spoken:
      English

      Amy Ney is a Dermatologist in Des Peres, Missouri. Dr. Ney is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Neurocutaneous Melanosis, Giant Congenital Nevus, Familial Atypical Multiple Mole Melanoma Syndrome, and Giant Congenital Melanocytic Nevus.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Deluxe Dermatology LLC

      11125 Dunn Rd, Suite 411, 
      Saint Louis, MO 
       (10.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Duane Dilworth is a Dermatologist in Saint Louis, Missouri. Dr. Dilworth is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Polymorphous Light Eruption, Actinic Keratosis, Comedones, and Seborrheic Keratosis. Dr. Dilworth is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Distinctive Dermatology Ltd

      390 Office Ct, 
      Fairview Heights, IL 
       (12.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Angela Sutton is a Dermatologist in Fairview Heights, Illinois. Dr. Sutton is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Kaposiform Hemangioendothelioma, Fetal Cystic Hygroma, Hemangioendothelioma, and Hemangioma. Dr. Sutton is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Distinctive Dermatology Ltd

      390 Office Ct, 
      Fairview Heights, IL 
       (12.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Susan Journagan is a Dermatologist in Fairview Heights, Illinois. Dr. Journagan is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Actinic Keratosis, Rosacea, Comedones, and Seborrheic Keratosis. Dr. Journagan is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Family Medicine
      Experienced in Stiff Skin Syndrome
      Family Medicine

      Mercy Clinic East Communities

      12348 Old Tesson Rd, Suite 240, 
      Saint Louis, MO 
       (12.4 miles away)
      Languages Spoken:
      English, Bosnian, Croatian, Serbian, Serbo Croatian
      Accepting New Patients

      Edina Karahodzic is a primary care provider, practicing in Family Medicine in Saint Louis, Missouri. Dr. Karahodzic is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Viral Pharyngitis, Tracheobronchomalacia, Acquired Tracheomalacia, and Cellulitis. Dr. Karahodzic is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Vista Dermatology LLC

      1058 Old Des Peres Rd, 
      Des Peres, MO 
       (13.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Emily Goeller is a Dermatologist in Des Peres, Missouri. Dr. Goeller is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Universal Acquired Melanosis, Liver Spots, Warts, and Actinic Keratosis. Dr. Goeller is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      General Surgery
      Experienced in Stiff Skin Syndrome
      General Surgery

      Mercy Clinic Surgical Specialists LLC

      621 S New Ballas Rd, Suite 3005b, 
      Saint Louis, MO 
       (13.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Julie Weber is a General Surgeon in Saint Louis, Missouri. Dr. Weber is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Necrosis, Peptic Ulcer, Cellulitis, Venous Insufficiency, and Endoscopy. Dr. Weber is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Vivo Dermatology And Skin Surgery

      621 S New Ballas Rd, Suite 597a, 
      Saint Louis, MO 
       (13.4 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients

      Wei-wei Huang is a Dermatologist in Saint Louis, Missouri. Dr. Huang is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Actinic Keratosis, Epidermoid Cyst, Warts, and Universal Acquired Melanosis. Dr. Huang is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Plastic Surgery
      Experienced in Stiff Skin Syndrome
      Plastic Surgery

      Mercy Clinic Burn And Plastic Surgery LLC

      11700 Studt Ave, 
      Saint Louis, MO 
       (13.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David German is a Plastic Surgeon in Saint Louis, Missouri. Dr. German is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Muscle Invasive Bladder Cancer, Non-Muscle Invasive Bladder Cancer, Stiff Skin Syndrome, and Bazex Syndrome. Dr. German is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Epiphany Dermatology Of Missouri LLC

      2325 Dougherty Ferry Rd, Suite 201, 
      Saint Louis, MO 
       (13.5 miles away)
      Languages Spoken:
      English

      James Donnelly is a Dermatologist in Saint Louis, Missouri. Dr. Donnelly is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Seborrheic Keratosis, Warts, Actinic Keratosis, and Neurocutaneous Melanosis.

      Experienced in Stiff Skin Syndrome
      Plastic Surgery
      Experienced in Stiff Skin Syndrome
      Plastic Surgery

      Mercy Clinic Plastic Surgery

      701 S New Ballas Rd, 
      Saint Louis, MO 
       (14.2 miles away)
      Languages Spoken:
      English

      David Yonick is a Plastic Surgeon in Saint Louis, Missouri. Dr. Yonick is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, Stiff Skin Syndrome, and Bazex Syndrome.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Forefront Dermatology Sc

      12855 N 40 Dr, Suite 180, 
      Saint Louis, MO 
       (14.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Garrett is a Dermatologist in Saint Louis, Missouri. Dr. Garrett is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Actinic Keratosis, Neurocutaneous Melanosis, Giant Congenital Nevus, and Giant Congenital Melanocytic Nevus. Dr. Garrett is currently accepting new patients.

      Showing 1-20 of 20

      Last Updated: 01/09/2026

      What is the definition of Stiff Skin Syndrome?

      Stiff skin syndrome (SSS) is a rare syndrome characterized by hard, thick skin, usually on the entire body. The thickening of the skin can limit joint mobility and causes joints to be stuck in a bent position (flexion contractures). Other signs and symptoms may include excessive hair growth (hypertrichosis), loss of body fat (lipodystrophy), scoliosis, muscle weakness, slow growth, and short stature. Weakness or paralysis of the eye muscles have also been reported. Stiff skin syndrome is caused by genetic changes (changes) in the FBN1 gene and is inherited in an autosomal dominant manner. Diagnosis is based on a clinical evaluation that is consistent with Stiff skin syndrome, and the diagnosis can be confirmed with genetic testing.

      When should I see a Stiff Skin Syndrome doctor near Saint Louis, MO?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Stiff Skin Syndrome doctor near Saint Louis, MO?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Stiff Skin Syndrome doctors near Saint Louis, MO?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Stiff Skin Syndrome doctors near Saint Louis, MO?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Stiff Skin Syndrome doctor near Saint Louis, MO?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Stiff Skin Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Stiff Skin Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Stiff Skin Syndrome doctor near Saint Louis, MO?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Stiff Skin Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Stiff Skin Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Stiff Skin Syndrome doctors near Saint Louis, MO?

      Look for the filter feature on the left side of the Stiff Skin Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Stiff Skin Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Stiff Skin Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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